Google
Trusted Resources: News & Events
Latest announcements and gatherings
PCORI Board Approves $18 Million for Research on Sickle Cell Disease
The Patient-Centered Outcomes Research Institute (PCORI) Board of Governors today approved about $18 million to fund two studies comparing different ways to manage the transition of people with sickle cell disease from pediatric to adult care.
Although children with sickle cell disease generally receive the care they need to manage their condition, the transition to adult care can be hazardous. Many primary care clinicians who treat adults are unfamiliar with caring for this rare condition, and patients can find it challenging to access care across specialists. Losing a source of care, such as pediatric specialty care, decreases the likelihood that young adults with sickle cell disease will receive preventive care and screening visits, and it increases the chance they will seek emergency department care when painful symptoms flare.
+myBinderRelated Content
-
A survey of sickle cell patients transitioned to adult care from Texas children’s hematology center between Januar...An estimated 93-98% of sickle cell disea...
-
University Hospitals Seidman Cancer CenterUniversity Hospitals Seidman Cancer Cent...
-
East Carolina University Comprehensive Sickle Cell CenterEast Carolina University Comprehensive S...
-
Susan Claster, MDDr. Claster graduated from the Universit...
-
Amber Yates, MDDr. Amber Yates is an Associate Director...
-
California Sickle Cell ResourcesThe Comprehensive Sickle Cell Center at ...
-
3 Tips about Sickle Cell Disease – Every emergency provider needs to knowChildren and adults with sickle cell dis...
To improve your experience on this site, we use cookies. This includes cookies essential for the basic functioning of our website, cookies for analytics purposes, and cookies enabling us to personalize site content. By clicking on 'Accept' or any content on this site, you agree that cookies can be placed. You may adjust your browser's cookie settings to suit your preferences. More Information
The cookie settings on this website are set to "allow cookies" to give you the best browsing experience possible. If you continue to use this website without changing your cookie settings or you click "Accept" below then you are consenting to this.
Powered by
Support for this site is provided by
This platform is made possible through a partnership with the Sickle Cell Disease Association of America, Inc. (SCDAA) and its member organizations. SCDAA's mission is to advocate for people affected by sickle cell conditions and empower community-based organizations to maximize quality of life and raise public consciousness while advancing the search for a universal cure.